Brigida Alexandra Amaral Mendes Riso

@medicina.ulisboa.pt

Faculdade de Medicina da Universidade de Lisboa
Faculdade de Medicina da Universidade de Lisboa

Brigida Alexandra Amaral Mendes Riso


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https://researchid.co/brigida.riso
7

Scopus Publications

276

Scholar Citations

6

Scholar h-index

4

Scholar i10-index

Scopus Publications

  • Building bridges: Involvement of animal care staff and laboratory technicians in experimental planning and conduct of animal studies for better job satisfaction and science
    Fernando Gonzalez-Uarquin, Paulin Jirkof, Bettina Bert, Penny Hawkins, Ljupco Angelovski, Jan Baumgart, Nadine Baumgart, Özge S. Cevik, Nuno H. Franco, Erdal Horata, Rohish Kaura, Winfried Neuhaus, Brigida Riso, Adrian J. Smith, Athanassia Sotiropoulos, Augusto Vitale, Sophie Schober
    Laboratory Animals, 2026
    The involvement of non-scientific staff in discussions about animal welfare and scientific quality is essential for biomedical research progress. In this study, we developed a survey to collect the self-perception of animal care staff (ACS) and laboratory technicians about their involvement in scientific planning and conduct. Participants were contacted to complete an anonymous online questionnaire. We obtained 850 responses, mainly from Europe: 564 from ACS and 286 from laboratory technicians. Job satisfaction was assessed as positive by ACS and laboratory technicians despite the low frequency of culture of care activities and mental health meetings. Both groups expressed their desire to be trained in research planning and conduct; however, regular training was not reported. In addition, the inability to act on animal welfare concerns owing to experimental reasons was reported by both groups. Over half of the participants felt valued and appreciated by the lead scientists or animal facility manager; however, it is not clear how they are acknowledged, as their names on the authors list or in the manuscript acknowledgments are barely included. Our results indicated that involvement of ACS and laboratory technicians in planning and conducting studies would improve their understanding of how experiments are done, and therefore communication processes, work satisfaction, animal welfare, and scientific quality. Finally, we provided recommendations to improve the engagement of ACS and laboratory technicians in discussions about animal research planning and conduct.
  • Toward a common interpretation of the 3Rs principles in animal research
    Jan Lauwereyns, Jeffrey Bajramovic, Bettina Bert, Samuel Camenzind, Joery De Kock, Alisa Elezović, Sevilay Erden, Fernando Gonzalez-Uarquin, Yesim Isil Ulman, Orsolya Ivett Hoffmann, Maria Kitsara, Nikolaos Kostomitsopoulos, Winfried Neuhaus, Benoit Petit-Demouliere, Simone Pollo, Brígida Riso, Sophie Schober, Athanassia Sotiropoulos, Aurélie Thomas, Augusto Vitale, Doris Wilflingseder, Arti Ahluwalia
    Lab Animal, 2024
    Many scientific breakthroughs have depended on animal research, yet the ethical concerns surrounding the use of animals in experimentation have long prompted discussions about humane treatment and responsible scientific practice. First articulated by Russell and Burch, the 3Rs Principles of Replacement, Reduction, and Refinement have gained widespread recognition as basic guidelines for animal research. Over time, the 3Rs have transcended the research community, influencing policy decisions, animal welfare advocacy and public perception of animal experimentation. Despite their broad acceptance, interpretations of the 3Rs vary substantially, shaping statutory frameworks at various levels, with both technical and practical impacts.
  • Portuguese and the biobanks: Profiles and attitudes of the Portuguese population towards biobanks for health research
    Brígida Riso, Mário J. D. S. Santos, Patrícia Ávila
    Portuguese Journal of Social Science, 2022
    Biobanks for clinical research collect human biological samples and associated data for biomedical research. The establishment of biobanks in Portugal is still an understudied phenomenon, although there are signs of a growing trend in setting up these repositories to support biomedical research. Among other factors, individuals’ willingness to donate samples and public trust in biobanks play a crucial role in sustaining biobanking activities. In this article, we analyse public attitudes in Portugal towards biobanking, based on data from the biotechnology survey conducted by Eurobarometer in 2010. Different assumptions about science and technology enabled profiling the Portuguese population into four distinct groups: the optimistic, the cautious, the sceptical and the pessimistic. Each profile implies a diverse range of intentions and attitudes regarding biobanks. Furthermore, we found that previous study of science could be an important predictor of the willingness to donate information to biobanks.
  • “Not Storing the Samples It’s Certainly Not a Good Service for Patients”: Constructing the Biobank as a Health Place
    Brígida Riso
    Societies, 2022
    Biobanks have been established from the beginning of the millennium as relevant infrastructures to support biomedical research. These repositories have also transformed the paradigm of collecting and storing samples and associated clinical data, moving these practices from the healthcare services and research laboratories to dedicated services. In Portugal, the establishment of biobanks is happening in the absence of a specific legal framework, turning it difficult to fully understand the scope of their action. This ethnographic research explored how establishing a biobank challenges the dynamics between healthcare and biomedical research. The ethnography intended to follow the path of biological samples from the hospital, where they were collected, to the biobank in a research institute, where they were stored. Findings suggest that although the nature of the biobank’s technical work seemed to inscribe it as a research-oriented setting, the biobank’s daily work was performed through symbolic action in the logic of care. Biobank staff constantly recalled the human nature of the samples, and they built complex illness narratives of each sample, promoting a connection with the absent donor. These practices were crucial to constructing the biobank as a health place, one that was designed to be life-saving in the near future.
  • Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality
    Oliver Feeney, Pascal Borry, Heike Felzmann, Lucia Galvagni, Ari Haukkala, Michele Loi, Salvör Nordal, Vojin Rakic, Brígida Riso, Sigrid Sterckx, Danya Vears
    Journal of Community Genetics, 2018
    The introduction of Web 2.0 technology, along with a population increasingly proficient in Information and Communications Technology (ICT), coupled with the rapid advancements in genetic testing methods, has seen an increase in the presence of participant-centred research initiatives. Such initiatives, aided by the centrality of ICT interconnections, and the ethos they propound seem to further embody the ideal of increasing the participatory nature of research, beyond what might be possible in non-ICT contexts alone. However, the majority of such research seems to actualise a much narrower definition of 'participation'-where it is merely the case that such research initiatives have increased contact with participants through ICT but are otherwise non-participatory in any important normative sense. Furthermore, the rhetoric of participant-centred initiatives tends to inflate this minimalist form of participation into something that it is not, i.e. something genuinely participatory, with greater connections with both the ICT-facilitated political contexts and the largely non-ICT participatory initiatives that have expanded in contemporary health and research contexts. In this paper, we highlight that genuine (ICT-based) 'participation' should enable a reasonable minimum threshold of participatory engagement through, at least, three central participatory elements: educative, sense of being involved and degree of control. While we agree with criticisms that, at present, genuine participation seems more rhetoric than reality, we believe that there is clear potential for a greater ICT-facilitated participatory engagement on all three participatory elements. We outline some practical steps such initiatives could take to further develop these elements and thereby their level of ICT-facilitated participatory engagement.
  • The challenges of the expanded availability of genomic information: an agenda-setting paper
    Pascal Borry, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, Martina C. Cornel, Heidi Carmen Howard, Oliver Feeney, Leigh Jackson, Deborah Mascalzoni, Álvaro Mendes, Borut Peterlin, Brigida Riso, Mahsa Shabani, Heather Skirton, Sigrid Sterckx, Danya Vears, Matthias Wjst, Heike Felzmann
    Journal of Community Genetics, 2018
    Rapid advances in microarray and sequencing technologies are making genotyping and genome sequencing more affordable and readily available. There is an expectation that genomic sequencing technologies improve personalized diagnosis and personalized drug therapy. Concurrently, provision of direct-to-consumer genetic testing by commercial providers has enabled individuals' direct access to their genomic data. The expanded availability of genomic data is perceived as influencing the relationship between the various parties involved including healthcare professionals, researchers, patients, individuals, families, industry, and government. This results in a need to revisit their roles and responsibilities. In a 1-day agenda-setting meeting organized by the COST Action IS1303 "Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives," participants discussed the main challenges associated with the expanded availability of genomic information, with a specific focus on public-private partnerships, and provided an outline from which to discuss in detail the identified challenges. This paper summarizes the points raised at this meeting in five main parts and highlights the key cross-cutting themes. In light of the increasing availability of genomic information, it is expected that this paper will provide timely direction for future research and policy making in this area.
  • Ethical sharing of health data in online platforms – which values should be considered?
    Brígida Riso, Aaro Tupasela, Danya F. Vears, Heike Felzmann, Julian Cockbain, Michele Loi, Nana C. H. Kongsholm, Silvia Zullo, Vojin Rakic
    Life Sciences Society and Policy, 2017
    Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology (ICT) platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes.With this in mind, the Science and Values Working Group of the COST Action CHIP ME 'Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives' (IS 1303) identified six core values they considered to be essential for the ethical sharing of health data using ICT platforms. We believe that using this ethical framework will promote respectful scientific practices in order to maintain individuals' trust in research.We use these values to analyse five ICT platforms and explore how emerging data sharing platforms are reconfiguring the data sharing experience from a range of perspectives. We discuss which types of values, rights and responsibilities they entail and enshrine within their philosophy or outlook on what it means to share personal health information. Through this discussion we address issues of the design and the development process of personal health data and patient-oriented infrastructures, as well as new forms of technologically-mediated empowerment.

RECENT SCHOLAR PUBLICATIONS

  • Building bridges: Involvement of animal care staff and laboratory technicians in experimental planning and conduct of animal studies for better job satisfaction and science
    F Gonzalez-Uarquin, P Jirkof, B Bert, P Hawkins, L Angelovski, ...
    Laboratory Animals, 00236772251400976 , 2026
    2026
  • Open Science Community Lisboa (OSC Lisboa): a experiência de criação de uma comunidade local de ciência aberta
    B Riso, C Boavida, CT Marques, M Cisneiros, R Castro, S Rehemtula
    2025
  • Rede Internacional de Comunidades de Ciência Aberta locais: duas Comunidades em Portugal
    C Boavida, B Riso, I Almeida, S Rehemtula
    2025
  • Toward a common interpretation of the 3Rs principles in animal research
    J Lauwereyns, J Bajramovic, B Bert, S Camenzind, J De Kock, A Elezović, ...
    Lab animal 53 (12), 347-350 , 2024
    2024
    Citations: 53
  • “O corpo é uma fonte de amostras”: Uma análise da conceptualização do corpo como objeto médico-científico na legislação portuguesa sobre biobancos
    B Riso
    SciELO Preprints , 2024
    2024
  • Os biobancos na investigação biomédica: desafios para a saúde na sociedade contemporânea
    B Riso
    Lisbon International Press , 2024
    2024
  • Tupasela Aaro (2021) Populations as brands: Marketing national resources for global data markets
    B Riso
    Science & Technology Studies 36 (1), 78-80 , 2023
    2023
  • Saúde ambiental: caderno de notas soltas III
    R Santos, O Santos, A Abreu, L Caminha, A Costa, S Sul, PJ Nogueira, ...
    AEFMUL/ISAMB-FMUL , 2023
    2023
  • Portuguese and the biobanks: Profiles and attitudes of the Portuguese population towards biobanks for health research
    B Riso, MJDS Santos, P Ávila
    portuguese journal of social science 21 (2), 167-186 , 2022
    2022
  • “Not storing the samples it’s certainly not a good service for patients”: Constructing the biobank as a health place
    B Riso
    Societies 12 (4), 113 , 2022
    2022
    Citations: 9
  • Digital informed consent: Possibilities and challenges in biobanks for health research
    B Riso, C Águas
    Cadernos de Saúde Societal, 53-62 , 2022
    2022
  • Património Cultural, Biobancos ou ambos? Repensar as coleções osteológicas humanas
    FA Cardoso, B Riso, C Duarte
    2021
  • A saúde armazenada: O biobanco na reconfiguração da saúde na sociedade contemporânea
    BAAM Riso
    PQDT-Global , 2021
    2021
    Citations: 2
  • Os Portugueses e os biobancos: um primeiro mapeamento de uma realidade emergente
    B Riso
    Biobancos, Investigação e Saúde Pública: Promessas e Desafios. Silva JP … , 2020
    2020
    Citations: 2
  • Construindo a saúde e a doença: os itinerários das amostras biológicas humanas na pesquisa biomédica contemporânea
    B Riso
    2019
  • Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality
    O Feeney, P Borry, H Felzmann, L Galvagni, A Haukkala, M Loi, S Nordal, ...
    Journal of community genetics 9 (2), 133-142 , 2018
    2018
    Citations: 21
  • The challenges of the expanded availability of genomic information: an agenda-setting paper
    P Borry, HB Bentzen, I Budin-Ljøsne, MC Cornel, HC Howard, O Feeney, ...
    Journal of community genetics 9 (2), 103-116 , 2018
    2018
    Citations: 98
  • Ethical sharing of health data in online platforms–which values should be considered?
    B Riso, A Tupasela, DF Vears, H Felzmann, J Cockbain, M Loi, ...
    Life sciences, society and policy 13 (1), 12 , 2017
    2017
    Citations: 80
  • Archiving health and illness: conceptualisation of the body in a Portuguese biobank
    B Riso
    2017
  • Biobancos de pesquisa clínica: uma questão de cidadania (biológica)[Clinical research Biobanks: a question of (biological) citizenship]
    B Riso
    2017

MOST CITED SCHOLAR PUBLICATIONS

  • The challenges of the expanded availability of genomic information: an agenda-setting paper
    P Borry, HB Bentzen, I Budin-Ljøsne, MC Cornel, HC Howard, O Feeney, ...
    Journal of community genetics 9 (2), 103-116 , 2018
    2018
    Citations: 98
  • Ethical sharing of health data in online platforms–which values should be considered?
    B Riso, A Tupasela, DF Vears, H Felzmann, J Cockbain, M Loi, ...
    Life sciences, society and policy 13 (1), 12 , 2017
    2017
    Citations: 80
  • Toward a common interpretation of the 3Rs principles in animal research
    J Lauwereyns, J Bajramovic, B Bert, S Camenzind, J De Kock, A Elezović, ...
    Lab animal 53 (12), 347-350 , 2024
    2024
    Citations: 53
  • Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality
    O Feeney, P Borry, H Felzmann, L Galvagni, A Haukkala, M Loi, S Nordal, ...
    Journal of community genetics 9 (2), 133-142 , 2018
    2018
    Citations: 21
  • “Not storing the samples it’s certainly not a good service for patients”: Constructing the biobank as a health place
    B Riso
    Societies 12 (4), 113 , 2022
    2022
    Citations: 9
  • A construção da escola como lugar de saúde: contributo para uma reflexão sobre as políticas de saúde escolar na sociedade portuguesa contemporânea
    B Riso
    Educação, Sociedade & Culturas, 77-97 , 2013
    2013
    Citations: 9
  • A saúde armazenada: O biobanco na reconfiguração da saúde na sociedade contemporânea
    BAAM Riso
    PQDT-Global , 2021
    2021
    Citations: 2
  • Os Portugueses e os biobancos: um primeiro mapeamento de uma realidade emergente
    B Riso
    Biobancos, Investigação e Saúde Pública: Promessas e Desafios. Silva JP … , 2020
    2020
    Citations: 2
  • O estatuto social do biobanco de pesquisa clínica
    B Riso
    CIES-IUL , 2016
    2016
    Citations: 2
  • Building bridges: Involvement of animal care staff and laboratory technicians in experimental planning and conduct of animal studies for better job satisfaction and science
    F Gonzalez-Uarquin, P Jirkof, B Bert, P Hawkins, L Angelovski, ...
    Laboratory Animals, 00236772251400976 , 2026
    2026
  • Open Science Community Lisboa (OSC Lisboa): a experiência de criação de uma comunidade local de ciência aberta
    B Riso, C Boavida, CT Marques, M Cisneiros, R Castro, S Rehemtula
    2025
  • Rede Internacional de Comunidades de Ciência Aberta locais: duas Comunidades em Portugal
    C Boavida, B Riso, I Almeida, S Rehemtula
    2025
  • “O corpo é uma fonte de amostras”: Uma análise da conceptualização do corpo como objeto médico-científico na legislação portuguesa sobre biobancos
    B Riso
    SciELO Preprints , 2024
    2024
  • Os biobancos na investigação biomédica: desafios para a saúde na sociedade contemporânea
    B Riso
    Lisbon International Press , 2024
    2024
  • Tupasela Aaro (2021) Populations as brands: Marketing national resources for global data markets
    B Riso
    Science & Technology Studies 36 (1), 78-80 , 2023
    2023
  • Saúde ambiental: caderno de notas soltas III
    R Santos, O Santos, A Abreu, L Caminha, A Costa, S Sul, PJ Nogueira, ...
    AEFMUL/ISAMB-FMUL , 2023
    2023
  • Portuguese and the biobanks: Profiles and attitudes of the Portuguese population towards biobanks for health research
    B Riso, MJDS Santos, P Ávila
    portuguese journal of social science 21 (2), 167-186 , 2022
    2022
  • Digital informed consent: Possibilities and challenges in biobanks for health research
    B Riso, C Águas
    Cadernos de Saúde Societal, 53-62 , 2022
    2022
  • Património Cultural, Biobancos ou ambos? Repensar as coleções osteológicas humanas
    FA Cardoso, B Riso, C Duarte
    2021
  • Construindo a saúde e a doença: os itinerários das amostras biológicas humanas na pesquisa biomédica contemporânea
    B Riso
    2019